I have included links to UCSF, Cherubs Site and Facebook. You most likely have already found them but if you haven't, take it slow. There is a ton of information there and an infinite number of stories. When I initially went there in 2001 I was completely overwhelmed and left hopeless. I have already stated it but will do so again. Your story is unique and will stay that way. Use the UCSF link to educate yourself. Fight hard, no matter what. My dad gave me some advice before Jarom was born. At first I didn't like it but now I have come to realize that it is true. He told me that no matter what happened, it would become normal for me and not to worry. He was right. Endure.
Use this UCSF link to educate yourself before looking elsewhere.